This research aims to understand young people’s experience of healthcare transition within the NHS. Our report highlights significant problems within the NHS transition process, with many young people experiencing delays, poor communication, and a lack of support. Despite NHS guidelines recommending transition from ages 11-13, all young people we surveyed began transitioning much later, often leading to rushed and unstructured care.
Poor communication between paediatric and adult services results in young people feeling lost, while gaps in mental health support left many without care during a critical period. Our parent/carer(s) survey reinforced these concerns, with many feeling excluded from decisions despite their key role in supporting young people.
To improve outcomes, healthcare services must ensure holistic care, better communication, and a more structured approach. Training led by experienced young people and greater family involvement would help create a smoother, more supportive transition that prioritizes long-term well-being.
This report is written by members of our NHS England Young Researchers 2024-25 cohort, a group of young people passionate about improving health services for young people across the country.